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National Cancer Data Base - Data Dictionary PUF 2013

Citing Data from the NCDB

While citation is largely at the discretion of the author(s), there are three key components of information that must be conveyed on all peer-reviewed publications that draw from NCDB data:

  • The NCDB is to be cited as a joint project of the American Cancer Society and the Commission on Cancer of the American College of Surgeons.
  • The American College of Surgeons has executed a Business Associate Agreement that includes a data use agreement with each of its Commission on Cancer accredited hospitals.
  • The NCDB, established in 1989, is a nationwide, facility-based, comprehensive clinical surveillance resource oncology data set that currently captures 70% of all newly diagnosed malignancies in the US annually.

A list of published studies using the NCDB is posted on-line at: http://www.facs.org/cancer/ncdb/biblclin.html.  In addition, projects that have been completed using the NCDB PUF are posted on the PUF on-line Data Dictionary link at http://ncdbpuf.facs.org/?q=node/304.

These studies should serve to demonstrate how previous users have approached the use of NCDB data, the patient socio-demographic factors, staging information, or treatment data. These bibliographic and project lists may serve as a useful reference as PUF Principle Investigators begin to familiarize themselves with NCDB PUFs.