While citation is largely at the discretion of the author(s), there are three key components of information that must be conveyed on all peer-reviewed publications that draw from NCDB data:
- The NCDB is to be cited as a joint project of the American Cancer Society and the Commission on Cancer of the American College of Surgeons.
- The American College of Surgeons has executed a Business Associate Agreement that includes a data use agreement with each of its Commission on Cancer accredited hospitals.
- The NCDB, established in 1989, is a nationwide, facility-based, comprehensive clinical surveillance resource oncology data set that currently captures 70% of all newly diagnosed malignancies in the US annually.
A list of published studies using the NCDB is posted on-line at: http://www.facs.org/cancer/ncdb/biblclin.html. In addition, projects that have been completed using the NCDB PUF are posted on the PUF on-line Data Dictionary link at http://ncdbpuf.facs.org/?q=node/304.
These studies should serve to demonstrate how previous users have approached the use of NCDB data, the patient socio-demographic factors, staging information, or treatment data. These bibliographic and project lists may serve as a useful reference as PUF Principle Investigators begin to familiarize themselves with NCDB PUFs.