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National Cancer Data Base - Data Dictionary PUF 2013

PATIENT DEMOGRAPHICS

Great Circle Distance

DD_category: 
PUF Data Item Name: 
CROWFLY
length: 
8
Description: 
The "great circle" distance in miles between the patient's residence and the hospital that reported the case.
Analytic Note: 

Residential latitude and longitude are based on the patient's zip code centroid or on the city if the zip code was not available.  Hospital locations are based on the street address for the facility.  The great circle distance is calculated between those two points.  In some instances, the residential city is outside of the United States, so the upper bound of distance may be quite large.  A distance of 0 can result when the patient lives in the same zip code where the facility is located.
 
The Haversine (half-versed-sine) formula is used to calculate the distance between the two locations.  It was published by R W Sinnott in Sky and Telescope, 1984, though known about for much longer by navigators.

Charlson/Deyo Score

DD_category: 
PUF Data Item Name: 
CDCC_TOTAL
length: 
1
Allowable values: 
0 - 2
Description: 
Comorbid conditions as described by Charlson/Deyo (1992) are mapped from as many as ten reported ICD-9-CM secondary diagnosis codes reported for cases diagnosed January 1, 2003 and later. A single summary cumulative value is represented.
Analytic Note: 

Because of the small proportion of cases with a Charlson Comorbidity score exceeding 2, the data have been truncated to 0, 1, 2 (greater than 1).  A score of 0 indicates "no comorbid conditions recorded", or none of the values shown below.  Note that the patient's cancer is not directly reflected in the recorded score.

Charlson Comorbidity Score Mapping:

Reported ICD-9 CM Codes

Primary Payor

DD_category: 
PUF Data Item Name: 
INSURANCE_STATUS
NAACCR Item #: 
630
length: 
1
Allowable values: 
0 – 9
Description: 
Identifies the patient's primary insurance carrier at the time of initial diagnosis and/or treatment.
Registry Coding Instructions: 

        Record the type of insurance reported on the patient's admission page.
       If more than one payer or insurance carrier is listed on the patient's admission page record the first.
        If the patient's payer or insurance carrier changes, do not change the initially recorded code.
 
Note: The category Medicare with Supplemental insurance is only reported for patients diagnosed on or after January 1, 2006.
 

Code

Spanish Origin

DD_category: 
PUF Data Item Name: 
SPANISH_HISPANIC_ORIGIN
NAACCR Item #: 
190
length: 
1
Allowable values: 
0 - 7, 9
Description: 
Identifies persons of Spanish or Hispanic origin.
Registry Coding Instructions: 

        Persons of Spanish or Hispanic origin may be of any race, but these categories are generally not used for Native Americans, Filipinos, or others who may have Spanish names.
        Code 0 (Non-Spanish; non-Hispanic) for Portuguese and Brazilian persons.
        If the patient has multiple tumors, all records should have the same code.

Code

Race

DD_category: 
PUF Data Item Name: 
RACE
NAACCR Item #: 
160
length: 
2
Allowable values: 
01 - 08, 10-17, 20 - 22, 25 - 28, 30 - 32, 96 - 99
Description: 
Identifies the primary race of the person
Registry Coding Instructions: 

        Race is analyzed with Spanish/Hispanic Origin (NAACCR Item #190). Both items must be recorded. All tumors for the same patient should have the same race code.
        Codes 08-13 became effective with diagnoses on or after January 1, 1988.
        Code 14 became effective with diagnoses on or after January 1, 1994.
     Codes 15 was changed from 09 and split into 16 and 17 in 2010; converted cases are likely to appear as 15.
        Codes 20-97 became effective with diagnoses on or after January 1, 1991. SEER participants in San Francisco, San JoseBMonterey, and Los Angeles are permitted to use codes 14 and 20-97 for cases diagnosed after January 1, 1987.
 
Note: Beginning in 2001 cancer registries recorded multiple race codes, as many as five.  These additional race codes are infrequently reported and are not provided as part of this file

Code

Sex

DD_category: 
PUF Data Item Name: 
SEX
length: 
1
Allowable values: 
1 - 4, 9
Description: 
Identifies the sex of the patient.
Registry Coding Instructions: 

Record the patient's sex as indicated in the medical record.

Code

Patient Age

DD_category: 
PUF Data Item Name: 
AGE
NAACCR Item #: 
2300
length: 
3
Allowable values: 
000 - 090, 999
text: 
Right Justified, Zero-filled
Description: 
Records the age of the patient at his or her last birthday before diagnosis.
Registry Coding Instructions: 

If the patient has multiple primaries, then the age at diagnosis may be different for subsequent primaries.

Analytic Note: 

In utero Date of Initial Diagnosis (NAACCR Item #390) was coded as equal to the Date of Birth (NAACCR Item #240) in the past.  Beginning in 2009, assignment is to the pre-birth date on which the diagnosis occurs.  Age at Diagnosis is assigned 000 for these cases.
For compliance with HIPAA privacy requirements, all patients age 90 or over at diagnosis are shown as 090.

Code

 

Case Key

DD_category: 
PUF Data Item Name: 
PUF_CASE_ID
length: 
37
Description: 
Unique case identification number assigned to the case in the PUF.
Registry Coding Instructions: 

None

NCDB System Code Assignments: 

NCDB assigned value that uniquely identifies each case included in the PUF.  The value assigned to each case is selected at random, and the value assigned to each case will change with each issued PUF. The PUF Case IDs are not the same across cancer sites, and cases cannot be linked across cancer sites.  
 
Note that the length of this key was expanded from 10 to 37 in January 2014.

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